SPD Support Forum

1. What brings you here? Hello. My son has SPD and I need to reach out to see what others are going through to make sure I'm not alone and going insane.

2. What is your relations to someone with SPD? Do you have it? a child of yours? Do you treat SPD kids as a professional? We are seeing an OT through Kaiser, which means we are lucky if we can get in once a month, and we are getting OT through the school. Any exercises we are shown we add on to our daily routine. I have purchased several items to be able to complete the exercise like a trampoline, tumbling mat, twirl rope for playset, climbing rope for playset, and a belly board.

3. Share a little of your journey if you'd like. My son is 5 but has had issues in preschool since he's been 2. It is a long journey, so to get to the point, this summer we decided to see a Behavioralist who immediately classified him as ADHD. Since my husband and I are teachers (science & history) we felt that there was more going on than typical ADHD behavior. With the encouragement from my son's school, we requested more testing. That's when we got the diagnosis of ADHD, ODD, and SPD. The school completed their own testing and felt he was on the autism spectrum too. They also provided a one-on-one aide. At this point, I just want to see my son learn to cope with his sensory overload and to learn it cannot always be "his way," especially at school. In some ways, the diagnosis were a relief b/c we now had a better path to finding out what we can do help our son and how to decrease the everyday clashes that occur at home.

4. Is there any immediate help you need? I think my husband and I just need to know what other people are going through and to hear about progress.

5. SPD doesn't run your life! What are you or your child's gifts? Interests? My son is super smart, has a large imagination, and a great heart when he is having a good day. He loves cars, trains, blocks, drawing, rescue bots (preschool version of transformers) and playing Team Umizoomi on the iPad.

6. What do you like to do in your spare time? Any hobbies or interests? I like to read, which works out since I am now reading a lot about SPD. I also like to watch movies, ride horses, teach dance, and be with my family.

Welcome. I've been on this ride for a year and a half. It never gets boring! But I also feel close to insanity often. I've gotten lots of encouragement here and hope you find the same. Feel free to be open with questions or comments. We all need each other's insights. My daughter (6) is diagnosed with ADD and SPD. What SPD books have you read?

(12-10-2013, 11:42 PM)LAC1961 Wrote: [ -> ]Welcome. I've been on this ride for a year and a half. It never gets boring! But I also feel close to insanity often. I've gotten lots of encouragement here and hope you find the same. Feel free to be open with questions or comments. We all need each other's insights. My daughter (6) is diagnosed with ADD and SPD. What SPD books have you read?

Thanks for your support. Sorry for my delayed response, I don't always have time to get on the computer at home. I have read "The out of Sync Child" and "The Whole Brain Child." I have multiple ADD, syndrome mix, and autism books. I figure there's a nugget of info that will help us in every book. DO you have books you recommend?

"Sensory Perceptual Issues in Autism and Asperger Syndrome: Different Sensory Experiences - Different Perceptual Worlds"

That's a book I recommend. It's another one that goes into "these are different ways people could have issues", but it goes more into the processing issues, instead of only the modulation issues. I also just felt different in how it was written somehow; I don't know, it was my favorite book that I've read for the purpose of going through and working on understanding what are symptoms; what is abnormal. Once you understand its easier to work on it.

I found an ebook, Ten Gems for the Brain, that was phenomenal. It's about addressing retained primitive reflexes. I've been reading a lot of ADHD books lately, so I'll have to go back to remember which SPD books I found the most helpful.