Hi- I'm New. I have a son whos 16 months who just got diagnosed with SID. He just started OT therapy today. He has sensory issues with eating & big time anxiety with crowds and people he doesn't know. Also, has some other sensory issues. My question to everyone out there, do you guys have any problems with family members thinking the dx is crazy or nothing wrong with your child? My MIL and her side of the family think that we are crazy and that there is nothing wrong with our son and that everyone is wrong with his dx. Not sure how I should handle this? Also, any new advice for us newbees with anything SID related? [/font]
Short answer to your question. Yes.
Some people think its an excuse, some think my son is naughty, my ex hasn't got a clue and would listen anyway.
You need to show them the explanation of the condition and then let them get on with it. If they don't want to know how difficult it is for your child then they do not deserve to be around hi, unless they gonna help.
By ignoring it your child will feel worse and your anxiety will get worse.
You can show them and let them read about it but if they not willing to accept you can't do anything about them. Or you can take them to your OT for her to explain.
Good luck, lots of advice on here too
I agree with Jaffa. It is very stressful because these are the people we normally would rely on for support and encouragement. Then "poof" it's gone when it comes to SPD. It's gotten so bad with my mom when I visit her (giving me dirty looks, rolling her eyes) that I don't want to see her any more. I want to scream, "do you think I would make this s**t up?" I tell people she's being treated for a neurological disorder causing developmental delays. I don't even mention SPD. You do grow a thick skin with your family and friends after a while, especially if you stay on this and similar web sites where you can get the support and encouragement you need to stay "sane".
I had my mother say, "So you can cure this, right?" I had my FIL say, " I told you, that you should of changed doctors earlier and got the shot to make her cured."
I have no other family near and my friends look at me as I am making something up. They don't understand the struggles. The anxiety of taking a child to a restaurant and hoping it is not too loud or the textures on the walls will be what your child fixates on.
I just found this website and it does help to vent and get advice on how to handle situations.
