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+--- Thread: Super frustrated and looking for support! (/thread-81.html)
Super frustrated and looking for support! - htramaglini - 07-23-2010
Hello everybody. I am a mom of a wonderfully happy 21 month year old. He is a sensory seeker and for any of you who know what that means(I assume many) it is exhausting. He is moving from morning(which is 5am for him) until night(which is 7:30 bedtime). I am 37, pregnant with #2 and can hardly keep up with him. Some days I feel like tearing my hair out. I would love the support of other moms and hope to also hear some success stories of kids who have gotten better with treatment. We just started early intervention this past week and I hope it helps. Any guidance and support will be greatly appreciated.
RE: Super frustrated and looking for support! - roosmommy - 07-25-2010
the only thing that will help u probaly espicaly since u will be having another baby is to ask ur ot about the sensory diet. that is basicaly a hr to hr schedual of all the sensory input ur son will need in a days time. trust me it is hard to adjust to but it does work if u keep too it i was able to keep to it for a month and my son was wonderful he too his a big time sensory seeker. my ot keeps telling me alot of activitys, heavy play, and deep presure, and to keep repution and repeat repeat... i too right now am at my whits end because everything has gotten out of controll and my son is back to spinning vocal out burtst and flapping.. im hoping to get him back on his sensory diest monday.. hope this will help u some.. we have been in treatment for 5 months now
RE: Super frustrated and looking for support! - htramaglini - 07-25-2010
(07-25-2010, 03:07 PM)roosmommy Wrote: the only thing that will help u probaly espicaly since u will be having another baby is to ask ur ot about the sensory diet. that is basicaly a hr to hr schedual of all the sensory input ur son will need in a days time. trust me it is hard to adjust to but it does work if u keep too it i was able to keep to it for a month and my son was wonderful he too his a big time sensory seeker. my ot keeps telling me alot of activitys, heavy play, and deep presure, and to keep repution and repeat repeat... i too right now am at my whits end because everything has gotten out of controll and my son is back to spinning vocal out burtst and flapping.. im hoping to get him back on his sensory diest monday.. hope this will help u some.. we have been in treatment for 5 months now
Thanks for your response. I assume that the treatment has worked to some degree for your son. I will ask the OT when she starts. THe process of eval has taken forever and the OT should be calling me anyday to schedule. What is flapping?
RE: Super frustrated and looking for support! - roosmommy - 07-26-2010
flapping is kinda hard to explain it when they move their hands really fast and cant control it. to me it looks like hes trin to take flight but cant get off the ground or he will move his fingures really fast against his thumbs. the one he does the most now is he will jump several times while screaming,flapping and twilting this fingures..
RE: Super frustrated and looking for support! - beck7422 - 07-28-2010
Does he have anything he can safely squeeze (like a forgiving stuffed animal)? Does he have a heavy blanket he can wrap himself in when he is having problems?
My muscles sometimes flap without any control on my part due to being in a lot of pain. The uncontrollable flapping of course makes the pain much worse. The pain only stops when my husband massages my muscles or triggers enough pain points that I just shut down entirely (which is preferable to flapping).
RE: Super frustrated and looking for support! - roosmommy - 07-30-2010
he hasw three blankets and it doesnt help.. and he has several forgivin stuffed animals but he rather have the real one lol poor kitty always in hiding... the only thing that seems to help a lil is the muscel massages at quiet time but with in 5 min of being up hes back to him self and now he has been a week with no ot so its really bad he is sick the doc thinks he might have whooping cough because he has beveloped croup one to many times in the last yr and this time his cough even after steroids is still very active some times it get soo bad that his face turns really red almost blue.. he went and got tested today so i wont know till the test comes back
RE: Super frustrated and looking for support! - Dani - 07-30-2010
Welcome to SPD International
Sorry it's taken me a while to get to you here. I've been pretty busy. I know you are going through a very rough time right now, but I just wanted to let you know and give you a bit of hope that things will get better. As someone who has been to OT many times for my own case of SPD, I have seen the positive effects of it first hand, and just wanted to tell you things will improve. It's very rough now, and yes, the addition of another child may make things even tougher for you and for your SPD kid. It also comes with its added benefits though, so it's not all bad.
I hope you stick around here and get to know people here. We love to offer advice when we can
. Take care.