mimmy
Newbie
Posts: 5
Joined: Feb 2011
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RE: 2 special children vs single stressed out mom!
I'm really sorry that you have to go through this. My other daughter (not the one I wrote about here) had an EEG when she was about 1.5 (she'd had a seizure-like "spell" and also had some other things going on that have since resolved). The doctor didn't request a sleep-deprived EEG, he just had us come during her normal nap time in hopes that she would fall asleep. No way! The first time we went, she fought so much that the techs had to give up, and we had to come back a few weeks later. The second time she did pretty well and stayed still enough for them to do the study. It didn't last long. But those electrodes and all the glue on the head are just a mess.
I think, if I understand it correctly, the reason doctors request sleep deprivation is that the brain is more likely to show abnormalities when under stress. I think it's okay if he doesn't actually sleep during the study (though that probably would make things easier!) Good luck, and I hope it goes as smoothly as possible.
(02-08-2011, 12:41 AM)tabbers1227 Wrote: thank you mimmy.
Went for sleep study results today and was told to get meletonin time release b/c the regular meletonin was wearing off. Dr said my son didn't have enough sleep apnea to cause the problems with his sleep, basically with all of his delays and stuff- he just has a difficult time sleeping. But the study showed increased brain waves. With meletonin they should have been decreased. Dr. asked me if he had ever had a seizure b/c these increased brain waves indicated seizure activity. I said no, I mean I would know and definitly would have told someone if my baby had a seizure. He said oh, ok- well this is also indications of ADHD.
I mean don't give me a freakin heart attack. This baby has enough to deal with and you throw this crap on our plate, then say oh well it could just be ADHD. I already knew he was most likely ADHD but specialist weren't sure how much was the SPD and how much was the other issues. Now he has to go for a "Sleep deprived EEG" which means WE have to stay up all night and go to childrens to have MORE things attached to his head and face. The 1st study he was so sad- he looked at me with all the wires on his face and said "MOMMY IT HURT" Then you have to wash the glue crap out of his hair when he refuses to was his hair to start with. 3 days of trying to scrub his head. I told him mommy was going to give him a hair cut before we go to this appt. The less hair, the less we have to scrub the glue out.
So as soon as I dropped my son off at school, I ran home trying to research all of the new info and decided not to jump to conclusions, that the dr should have taken a better approach and it's most likely ADHD. Besides I will only make myself sick if I worry.
I was wondering if anyone has ever heard of this or has been through this? Maybe some ideas of what to expect? I know they are going to hook up like 25-30 wires and want him to go to sleep. But how long before I know anything and what happens if he won't go to sleep? Any info would be great! Thanks
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02-08-2011, 01:01 PM |
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