(03-20-2012, 03:29 AM)beck7422 Wrote: This may seem like an odd question, but has your daughter gone to a chiropractor? Because of my muscle weakness problems, my muscles are constantly pulling my bones out of alignment. It got so bad, prior to the chiropractor, that I had a lot of vertigo. When I was in a car, I felt like cells of my body were being left behind and when we stopped they would run forward without my body. It was a horrible sensation.

Now that I get my back and neck realigned once a week, I usually only have a little vertigo or other related problems when I need an adjustment. After the adjustment the problem goes away for a few days.

I wonder if your daughter's disability might be playing havock on her muscles, bones, and nerves. That can magnify sensory problems a lot.

My balance has greatly improved since seeing the chiropractor. I still have problems when I have paralysis and weakness attacks (from my Hypokalemic Periodic Paralysis), but a good portion of the time now I can "fake" being a normal person when walking short distances. Long distances (more than 200 feet) are enough to trigger my disability through exhaustion.

Thanks so much the information! yes, she has been going to a chiropractor since she was a baby (much to the disapproval of the hospital!) and i would definately say they've helped to keep her spine as straight as possible and loosen off any tightness around the neck area but it hasnt helped with the 'stopping' episodes yet. Im very interested to hear about the feeling you get when the car stops moving as im sure she must be getting similar sensations. As shes only just turned 4 shes still very young and just cries at all these things. I tried music today when we stopped & it worked for a few minutes but then she got upset again. I usually end up taking her out her buggy for a cuddle coz thats what calms her down but i just wondered if this was the right thing to do or am i actually making things worse by perhaps turning the situation into a behavioural one. Because i dont know how she feels im not sure what the right thing to do is? I definately agree that her disability plays havock with her muscles, bones & nerves. Do you think any kind of medicine would maybe help, ie something to calm her down abit?
Thanks xx

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(03-19-2012, 10:08 PM)Tuttleturtle Wrote: I've found if I'm wrapped up in a blanket then its easier on me. Have you tried various things like that?

Hi there, thanks for your message! no ive not tried wrapping her in a blanket but i will definately give it a go. Can i ask what sensations you feel when, say for example, the car stops moving? Im just trying to get my head round how she might be feeling because she gets so upset by it. Many thanks x