(03-05-2011, 06:05 PM)AngelaVA Wrote: Not many posts in this forum, just curious if we are the only ones doing CFGF and biomed treatments?

Hi! No...you are not the only one doing this! I apologize. As Dan mentioned, my life is pretty insane and I do not check this forum as often as I should.

My 9yo ASD daughter has been GFCF soy and nut-free for 4 years and I've also been GFCFSF for about 2 or so. It has made all the difference for her. I, too, had issues in the past with people who were unfamiliar with the diet and were somewhat critical or made comments before thinking, but I learned to let it go, learned to know when to make comments, and I certainly learned some facts so when the traditional pediatrician made "ignorant" comments, I could answer back with intelligent/reasonable answers and comments of my own. Mostly, I realized that not everyone was going to support me and I decided that was okay. I knew that I'd done my homework, was feeding my daughter properly, that this was working for us and was the right decision for us and I didn't need their support.

RE: a supportive Dr., I use a DAN! (Defeat Autism Now!) Dr. to help with with her biomedical needs and issues/treat her ASD and the traditional ped for typical childhood illnesses. I will say that since starting the diet and biomed protocol, she only goes in 1x year for her annual checkup. (Except this year when she had the flu). This year the Ped requested a note from her DAN for the files so he could see the details about the "what" and "how" of her treatments. The DAN dr has been wonderful...when he heard about the troubles in the beginning of the year with school and her Aspergers/IEP/kids in the classroom, he wrote a supportive letter about what her issues are, what the school could do and how they could help her.

I will tell you that even with a DAN Dr, you have to read labels. I've discovered that when it comes to medical care, there is no sitting back and letting the dr treat me or my daughter. I have to be as proactive about our care as the Dr treating us. In reality, they are only human and can't know everything about everything, even though we've been trained to believe they can.

<>>>There is a strong genetic component in sensory problems, and my father's side of the family has all kinds of history of things like autism, SPD, and related things like dyslexia. And since there are a lot of food allergies there, too, I'm a bit concerned and wonder how that all links in. <>>>
I've come to see there is a very definite link and while removing intolerant foods may not always "cure" the person, it can certainly improve their symptoms. I find this to be another good book on the topic of biomed treatments:
“Changing the Course of Autism: A Scientific Approach for Parents and Physicians” by Dr. Bryan Jepson with Jane Johnson

Anna in MD