Hi Jan,
You are certainly not alone with this. I am new to this site too. My 5 yr old has recently been diagnosed. It's a difficult world to live in when things aren't the same as for others.
I live in the uk. My child was sent to see Occupational Therapist who was the one to discover he had it.
There isn't as far as I am aware a lot that can b done about it, she said you learn coping mechanisms as you get older. For my son he has things like weighted pad to sit and eat his dinner to watch TV. In school he has a mat he sits on to jiggle his bum so he will stay seated.
He too hated loud noises, smells, labels, certain clothes, texture of food. He would scream till he was sick when having his hair cut. He frequently goes in to screaming and crying mode where he use to drop like a stone to the floor. His thermostat seems to be broken too.
Now I know why things are happening and that he can't help it life doesn't seem half as bad. Would still like more info about it though.