<![CDATA[SPD Support Forum

<![CDATA[SPD Support Forum - All Forums]]> http://spdsupport.org/forum/ Sat, 19 May 2012 13:52:26 +0000 MyBB <![CDATA[Just discovered my own SPD]]> http://spdsupport.org/forum/thread-623.html Fri, 18 May 2012 10:35:07 -0600 http://spdsupport.org/forum/thread-623.html
Two out of my three daughters have SPD. One is a mix of hypo and hyper sensitivity and the other is extremely hyper sensitive. Taking care of them it never dawned on me at all either.

Today their OT was at the house and I was making mention of this to her. She went through the check list and did a evaluation on me (She is actually a very good friend now of the family, so she didn't charge me lol) and she told me that I have mild SPD with hypersensitvity. Honestly, it didn't shock me. But, she said for never having any type of care for spd, I have done very well adapting. It seems that it comes in cycles with me. I tend to cycle with my youngest daughter.

So, as an adult just finding out, but has coped with it on my own, does anyone have advice? It never bothers me too much unless I am extremely overwhelmed.]]>
Two out of my three daughters have SPD. One is a mix of hypo and hyper sensitivity and the other is extremely hyper sensitive. Taking care of them it never dawned on me at all either.

Today their OT was at the house and I was making mention of this to her. She went through the check list and did a evaluation on me (She is actually a very good friend now of the family, so she didn't charge me lol) and she told me that I have mild SPD with hypersensitvity. Honestly, it didn't shock me. But, she said for never having any type of care for spd, I have done very well adapting. It seems that it comes in cycles with me. I tend to cycle with my youngest daughter.

So, as an adult just finding out, but has coped with it on my own, does anyone have advice? It never bothers me too much unless I am extremely overwhelmed.]]> <![CDATA[Looking for help for my sensory seeking child...]]> http://spdsupport.org/forum/thread-621.html Thu, 17 May 2012 19:17:22 -0600 http://spdsupport.org/forum/thread-621.html I am heartbroken that she will not get any therapy for another 4 months. Our insurance company says they will not cover independent occupational therapists for sensory issues, stating, "sensory integration is experimental and has not been proven, therefore will not be covered".
Unfortunately we do not have the funds to cover paying out of pocket for therapy, so we are at the point where I will need to provide her will some therapy myself. I am determined to give my child what she needs, however challenging that is. Any help or suggestions would be GREATLY appreciated!!!
Thank you !!

I thought I'd add that she is a sensory seeker, but has not been diagnosed with any disorder.
Some of her issues are:
- She has a speech delay - still need to interpret for most people, although her receptive speech is way above normal.
- low oral tone
- Has NEVER eaten meat, since starting solids (has seen a nutritionist & has a decent diet otherwise - nuts, grains, veggies, tofu, eggs)
- Will stuff her mouth when eating something she likes - specifically cookies, muffins, bread, etc)
- fidgets constantly
- chews on everything inappropriate (now we have chewelry)
- walks on tiptoes
- is highly intelligent but has a hard time focussing in a group
- Hugs aggressively when excited - her peers don't like this.
- Is very high strung - quick to get upset when things don't go according to plan
- Does not respond to typical discipline, even though we have been consistent with time-outs & natural consequences. (i.e - when at our wits end we regretfully have spanked her but in response, she LAUGHS!!)
- Will have a stretch of being perfectly happy, then all issues intensify inexplicably.
- We find ourselves saying "she just doesn't listen", when we repeatedly tell her don't climb on that, don't climb on that, etc, and then she immediately does it. This is the most frustrating part since we can't help to feel that it reflects on us as parents, even though we really know that her impulses are just too great to control.]]> I am heartbroken that she will not get any therapy for another 4 months. Our insurance company says they will not cover independent occupational therapists for sensory issues, stating, "sensory integration is experimental and has not been proven, therefore will not be covered".
Unfortunately we do not have the funds to cover paying out of pocket for therapy, so we are at the point where I will need to provide her will some therapy myself. I am determined to give my child what she needs, however challenging that is. Any help or suggestions would be GREATLY appreciated!!!
Thank you !!

I thought I'd add that she is a sensory seeker, but has not been diagnosed with any disorder.
Some of her issues are:
- She has a speech delay - still need to interpret for most people, although her receptive speech is way above normal.
- low oral tone
- Has NEVER eaten meat, since starting solids (has seen a nutritionist & has a decent diet otherwise - nuts, grains, veggies, tofu, eggs)
- Will stuff her mouth when eating something she likes - specifically cookies, muffins, bread, etc)
- fidgets constantly
- chews on everything inappropriate (now we have chewelry)
- walks on tiptoes
- is highly intelligent but has a hard time focussing in a group
- Hugs aggressively when excited - her peers don't like this.
- Is very high strung - quick to get upset when things don't go according to plan
- Does not respond to typical discipline, even though we have been consistent with time-outs & natural consequences. (i.e - when at our wits end we regretfully have spanked her but in response, she LAUGHS!!)
- Will have a stretch of being perfectly happy, then all issues intensify inexplicably.
- We find ourselves saying "she just doesn't listen", when we repeatedly tell her don't climb on that, don't climb on that, etc, and then she immediately does it. This is the most frustrating part since we can't help to feel that it reflects on us as parents, even though we really know that her impulses are just too great to control.]]> <![CDATA[Handeling meltdowns]]> http://spdsupport.org/forum/thread-620.html Thu, 17 May 2012 18:30:34 -0600 http://spdsupport.org/forum/thread-620.html ]]> ]]> <![CDATA[Hello]]> http://spdsupport.org/forum/thread-619.html Thu, 17 May 2012 09:39:07 -0600 http://spdsupport.org/forum/thread-619.html <![CDATA[Finally some progress!]]> http://spdsupport.org/forum/thread-618.html Thu, 17 May 2012 09:34:03 -0600 http://spdsupport.org/forum/thread-618.html <![CDATA[meal time struggles.]]> http://spdsupport.org/forum/thread-617.html Wed, 16 May 2012 15:28:33 -0600 http://spdsupport.org/forum/thread-617.html <![CDATA[A little about me]]> http://spdsupport.org/forum/thread-615.html Wed, 16 May 2012 10:28:30 -0600 http://spdsupport.org/forum/thread-615.html
Growing up, I would have meltdowns; triggered by even the smallest things. This resulted in the name "cry baby" by my classmates. I would often not look people in the eye (often look at shoes instead), shy away and hide. My parents worried that I might not finish high school. I have always felt social awkward; difficulty connecting with people, even my family.

I need some support in talking to people who understand it and can relate to. [Already finding some of that. Shy

] It seems that there is not much in my area available for someone with SPD; especially for adults. I would have to take a trip to go to an Occupational Therapist that specializes in SPD...... I have had a chance for some therapy and counseling in my life prior to finding out about SPD. And I have made accomplishments that surprised those around me.....

I love to do acrylic painting, journaling, learning how to knit and loving my dogs. Shy

]]>
Growing up, I would have meltdowns; triggered by even the smallest things. This resulted in the name "cry baby" by my classmates. I would often not look people in the eye (often look at shoes instead), shy away and hide. My parents worried that I might not finish high school. I have always felt social awkward; difficulty connecting with people, even my family.

I need some support in talking to people who understand it and can relate to. [Already finding some of that. Shy

]]> <![CDATA[Hello :)]]> http://spdsupport.org/forum/thread-616.html Tue, 15 May 2012 19:29:58 -0600 http://spdsupport.org/forum/thread-616.html I can't wait to get to know you all.]]> I can't wait to get to know you all.]]> <![CDATA[how do i punish my spd child]]> http://spdsupport.org/forum/thread-614.html Sat, 12 May 2012 07:58:35 -0600 http://spdsupport.org/forum/thread-614.html <![CDATA[Is it really pain?]]> http://spdsupport.org/forum/thread-612.html Tue, 08 May 2012 19:48:53 -0600 http://spdsupport.org/forum/thread-612.html At first I felt like he used this as a excuse to not do things asked of him. I would validate how he felt, gave some wait time, and he would still be required to do the task asked of him.
Lately the back "pain" is every morning, and several other times during the day. I am wondering if it might be some type of hyperactive nerves. Any suggestions???]]> At first I felt like he used this as a excuse to not do things asked of him. I would validate how he felt, gave some wait time, and he would still be required to do the task asked of him.
Lately the back "pain" is every morning, and several other times during the day. I am wondering if it might be some type of hyperactive nerves. Any suggestions???]]> <![CDATA[Articles, Links, Helpful Websites]]> http://spdsupport.org/forum/thread-611.html Tue, 08 May 2012 16:03:45 -0600 http://spdsupport.org/forum/thread-611.html Another (unrelated) forum I'm on doesn't allow commercial links, and I do see the purpose of having that rule.

http://understandingspd.com/1/post/2012/...ourse.html]]> Another (unrelated) forum I'm on doesn't allow commercial links, and I do see the purpose of having that rule.

http://understandingspd.com/1/post/2012/...ourse.html]]> <![CDATA[Hello]]> http://spdsupport.org/forum/thread-610.html Mon, 07 May 2012 12:05:31 -0600 http://spdsupport.org/forum/thread-610.html
God bless]]>
God bless]]> <![CDATA[The SPFoundation Survey]]> http://spdsupport.org/forum/thread-609.html Mon, 07 May 2012 05:40:16 -0600 http://spdsupport.org/forum/thread-609.html Take part in an online research study – adults and/or parents of children 7-17 years old. Go to http://tinyurl.com/sensorystudy1 for more details]]> Take part in an online research study – adults and/or parents of children 7-17 years old. Go to http://tinyurl.com/sensorystudy1 for more details]]> <![CDATA[Hello]]> http://spdsupport.org/forum/thread-608.html Sun, 06 May 2012 00:53:32 -0600 http://spdsupport.org/forum/thread-608.html I'm Bernadette yes it's my real name that's ok Smile

. I live in Tasmania, Australia. I have 2 children aged 23 and 21, and have just celebrated my 25th Wedding Anniversary.
I have several interests in the Sensory Processing area.
Firstly my daughter who is 21, has had lifelong sensory processing difficulties, that were enough to have me wondering by the time she was 4 whether she had Autism. But, when I discussed it with others, for example my son's teacher, they all said 'no, she's too verbal to be autistic' Confused

Now I know that what she was experiencing was sensory issues, and she doesn't have the social deficits that define Autism. We never got a SPD diagnosis, I have only found out about SPD in the last 5 years or so, through my work associations. I wouldn't go as far as to say that she has a 'disorder' as it's never come to a point where the sensory issues have completely over-ridden her ability and capacity to participate and enjoy life.

But I now know that I have quite a few sensory defensive issues myself, and my husband (no surprise) is probably a sensory seeker to some degree.

That's what's hard about SPD - its all about degree.
My other interest in SPD - I mentioned I learned about it through work. I have 18 years experience in disability support, case management and currently do intake in a large NGO that provides government Disability referrals, support and case management. So SPD as it applies to diagnoses such as Autism Spectrum disorders and other intellectual and learning disabilities, also interest me greatly.

I don't need help now, although I wish someone who knew had been able to help me, when we had difficulty with - hair brushing/washing, eating with cutlery, the sound of paper tearing, riding a bike, oh so many things I can't remember Smile

I am happy to help others who are starting this journey and confused.

Bernadette.]]> I'm Bernadette yes it's my real name that's ok Smile

I am happy to help others who are starting this journey and confused.

Bernadette.]]> <![CDATA[Over responsive & reading/homework]]> http://spdsupport.org/forum/thread-607.html Wed, 02 May 2012 21:10:10 -0600 http://spdsupport.org/forum/thread-607.html <![CDATA[introducing my little guy]]> http://spdsupport.org/forum/thread-606.html Tue, 01 May 2012 20:07:58 -0600 http://spdsupport.org/forum/thread-606.html we live in tx and homeschool. he has an older sister who is almost 4, shes as healthy as can be aside from kidney and ear issues but its low maintenance Smile

http://farm8.staticflickr.com/7088/69879...1a7df8.jpg]]> we live in tx and homeschool. he has an older sister who is almost 4, shes as healthy as can be aside from kidney and ear issues but its low maintenance Smile

http://farm8.staticflickr.com/7088/69879...1a7df8.jpg]]> <![CDATA[SPD and ADA... accommodation at work?]]> http://spdsupport.org/forum/thread-605.html Sun, 29 Apr 2012 01:58:45 -0600 http://spdsupport.org/forum/thread-605.html
Has anyone asked for accommodations for spd under the americans with disabilities act? I am just so so so so so upset Huh

]]>
Has anyone asked for accommodations for spd under the americans with disabilities act? I am just so so so so so upset Huh

]]> <![CDATA[SPD and ADA... accommodation at work?]]> http://spdsupport.org/forum/thread-604.html Sun, 29 Apr 2012 01:56:50 -0600 http://spdsupport.org/forum/thread-604.html
Has anyone asked for accommodations for spd under the americans with disabilities act? I am so so upset Huh

]]>
Has anyone asked for accommodations for spd under the americans with disabilities act? I am so so upset Huh

]]> <![CDATA[New SPD study that you can participate in!]]> http://spdsupport.org/forum/thread-603.html Sat, 28 Apr 2012 20:20:14 -0600 http://spdsupport.org/forum/thread-603.html
As many of you may well know, the SPD Foundation is the leader of research and advocacy in the SPD world. Well, I have just been notified of a new and exciting online research study that is underway right now!

You can participate and find out more about it here:
http://www.sinetwork.org/researchlanding.html

This is for both adults and parents! The foundation is looking for people in all categories for this. You need not have SPD to participate. In fact, according to those who are running this study, they actually really *want* 'neurotypical' (non-SPD/ASD/ADHD) adults in order to have some controls for their research.

Here are some FAQs I would imagine you might have for me:

What is it?
It's a three part online survey. It's mostly multiple choice with only a few questions on the first couple pages that ask for more specific information from you. Each part of the survey is done separately, allowing for logical breaking points in between.

What kind of questions does it ask?
It asks a ton of questions, to be honest. It really varies. Some of it has to do with sensory-related stuff, others have very little to do with it (at least, not directly). I feel it is important to leave the exact questions out though, as knowing specifics ahead of time may effect results.

How long does it take?
That depends on how fast you are at reading and answering personal multiple choice questions, really. What's cool about this survey though, is that you can pretty much leave at any point and come back to complete it later. Not only are the three parts of the survey individually split, allowing you to completely stop and come back later, each page of the individual surveys gives you the option to "Save and Exit" the survey. This stores whatever data you have entered and allows you to come back to finish later.

Who do they want taking this survey?
Basically, as many people as they can get. Here's what they say:

The SPD Foundation Wrote:We are looking for:
- Typically developing children or adults
or
- Children or adults diagnosed with:

Sensory Processing Disorder

Autism Spectrum Disorders

Anxiety disorders (any)

ADHD

Can we trust them with our info?
Yes. This is the SPD Foundation. Everything involving your privacy is legally bound and protected. There is a small agreement you have to accept before taking each part of the study (they are all the same agreement). The survey has also received IRB/ethical approval.

What's in it for me?
No immediate gains, really, but really, the more info and statistics the SPD Foundation is able to gather to make its case and get reliable data, the better! By taking the hour or two it will take you to take this test, you are being a part of a much bigger and higher cause.

Would you take it, Dan?
Of course I would. In fact, I already did! It took me a bit longer than they said it probably would, but I'm a slow processor. Wink

For more information and to participate in the free online survey, visit the SPD Foundation website here:
http://www.sinetwork.org/researchlanding.html

Thanks everyone. I understand if you can't participate, but it'd be great if many of you could. Smile

-Dan]]>
As many of you may well know, the SPD Foundation is the leader of research and advocacy in the SPD world. Well, I have just been notified of a new and exciting online research study that is underway right now!

You can participate and find out more about it here:
http://www.sinetwork.org/researchlanding.html

This is for both adults and parents! The foundation is looking for people in all categories for this. You need not have SPD to participate. In fact, according to those who are running this study, they actually really *want* 'neurotypical' (non-SPD/ASD/ADHD) adults in order to have some controls for their research.

Here are some FAQs I would imagine you might have for me:

What is it?
It's a three part online survey. It's mostly multiple choice with only a few questions on the first couple pages that ask for more specific information from you. Each part of the survey is done separately, allowing for logical breaking points in between.

What kind of questions does it ask?
It asks a ton of questions, to be honest. It really varies. Some of it has to do with sensory-related stuff, others have very little to do with it (at least, not directly). I feel it is important to leave the exact questions out though, as knowing specifics ahead of time may effect results.

How long does it take?
That depends on how fast you are at reading and answering personal multiple choice questions, really. What's cool about this survey though, is that you can pretty much leave at any point and come back to complete it later. Not only are the three parts of the survey individually split, allowing you to completely stop and come back later, each page of the individual surveys gives you the option to "Save and Exit" the survey. This stores whatever data you have entered and allows you to come back to finish later.

Who do they want taking this survey?
Basically, as many people as they can get. Here's what they say:

The SPD Foundation Wrote:We are looking for:
- Typically developing children or adults
or
- Children or adults diagnosed with:

Sensory Processing Disorder

Autism Spectrum Disorders

Anxiety disorders (any)

ADHD

-Dan]]> <![CDATA[Orthotics]]> http://spdsupport.org/forum/thread-602.html Thu, 26 Apr 2012 13:13:59 -0600 http://spdsupport.org/forum/thread-602.html
Does anyone have a child that is sensory seeking and hyper sensitive and also does physical therapy and require orthotics? Any advice?]]>
Does anyone have a child that is sensory seeking and hyper sensitive and also does physical therapy and require orthotics? Any advice?]]>