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Weddings?
Author Message
Ourfishies Offline
Regular

Posts: 39
Joined: Aug 2010
#1
Weddings?

Hey, I have a question.

What do people with SPD do to get through weddings? My boyfriend has SPD and he says weddings are probably the worst and hardest thing. Not only does he have to wear uncomfortable nice clothes which constantly irritate him, but he has to spend hours around people, laughing, cheering, perfumes, lights, etc. On top of that, people expect him to be super happy and can't understand if he's not or keeps having to go outside to take breaks. And finally, there's the dancing that you're pretty much forced to do after being completely over-stimulated and exhausted. He says it's just hours of his heart racing and feeling unbearably anxious. It sounds torturous. Sad

We have some friends (2 different couples) who are getting married this Fall and have to reply to the invites soon. One couple we're super close with and my boyfriend is a groomsmen so we gotta go. But we're not AS close to the other couple. I really wanna go together but my boyfriend says he doesn't want to because he wont enjoy it and it's too much for someone he's not super close to. Even though he wont/can't enjoy his best friend's wedding, he's going because it's his best friend and he wants to support them.

I wish there was something we could do to make it easier for him. Does anyone have any suggestions?


Is there anyone else who has a significant other with SPD? I feel so horribly selfish so much of the time. I love my boyfriend so much and we're gonna find ways to make everything work, but I wouldn't mind hearing from other people who can relate to my selfishness - my selfish desires to just go to parties and have my boyfriend with me...to not have to keep explaining to people that my boyfriend isn't anti-social or hates people...

And if anyone has tips for how I can be less selfish and more understanding, I would greatly appreciate that. Undecided I think it's really just gonna take me time to adapt and change my expectations about our relationship. But if anyone has any other suggestion, please share!

thanks, and sorry for the ranting.
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mawkinberd Offline
Regular

Posts: 218
Joined: Jun 2010
#2
RE: Weddings?

Aw, no problem on the ranting. hug It is very hard to deal with the way your expectations are very much turned on their head. It's not about being selfish; it's about learning to change what you expect and learning to appreciate new things. And while people with unfamiliar sensitivities may have completely different strengths than others, they do have interesting things that are wonderful all on their own. If not, you wouldn't be trying so hard to help him. Smile (Or, for that matter, be with him at all!)

Weddings can be torturous. I actually planned my wedding so that the elements that bother me the most were not a part of it. I had professionals doing my music (no out of tune craziness or tapes for me!), the flowers were mostly unscented or very lightly scented, it was a small church with only around 50 visitors and a short sermon, and NO DANCING. lol Since I've actually forced myself through the torture of being in disco clubs all night with some friends, I know I could make myself do it, but why make my wedding an awful memory?

So, as the bride, it seemed to go by so quickly. I was super focused on the words, on the way people looked at me and each other, on my husband's expressions, and so on. As the best man or something else like that, I can see that your boyfriend anticipates being overwhelmed by the ceremony. When I have to sit (or stand) in public for an extended period of time, I have several things I do. One, I tend to meditate. If I'm standing, I'll make it a body meditation, where I will pretend I am "breathing" through different body parts to help relax. If I'm sitting, I'll count to four on my breaths and repeat indefinitely. One, it keeps you from getting drowsy and groggy. Two, it can help keep your mind off of different body distractions. The only drawback to that is you have to practice a lot prior to the event to make it work. Another thing I do is have a fidget of some sort. I have a ring that is a pocket rosary. I twirl it around my finger or (in a pinch) squeeze it against my joints to distract from sudden sensory issues. Sometimes, I'll even use it as a rosary, if I have the foresight to do so. Since men have the advantage of wearing fancy clothes with pockets at weddings, he can slip something of varying sizes in his pocket and potentially put his hand in to fidget whenever he feels the need, and no one else need be the wiser.

As for the dancing, I understand completely. The moving around, the noise, the press of people around you... there are few social situations that turn my triggers worse than a public dance. (Fireworks and bars come to mind.) If he has obligations as part of the wedding party to dance, then that's understandable, but after that, encourage him to sit it out. There's no reason to stress himself that much. If he needs to make his excuses to the restroom and then return to the tables rather than the dance floor, that will help. It wouldn't bring any attention to it, and he would have a chance to escape most of the triggers and relax for a bit before he returns. Another thing he might consider (if he's very sensitive to sound) is some sort of light ear plugs, but if he were to do that, I would strongly encourage him to try them out well before he goes. Ear plugs can change your sense of balance as well as hearing, so it might be better to leave them off if it makes him feel as though he's going to fall.

Whatever plan he makes to help, work with all the coping mechanisms long before he gets there. As he gets to depend on and trust these things, he will gain confidence in his ability to be able to handle them and depend on them when he needs it most.

Everyone here has different ways they cope with different situations, so I'm sure you'll get more (and probably better!) suggestions. If he finds something he really likes, I would love to know!
Affectionately yours,
Sarah
My Blog - Mawkinberd's Nest
Website Find Reply
beck7422 Offline
Regular

Posts: 342
Joined: Jun 2010
#3
RE: Weddings?

Weddings and SPD, definitely a challenge.

For when he is Best Man versus just a groomsman, he might be able to wear something slightly different from the rest of the groomsmen. Due to this, once you find out which materials are the most comfortable for him, see if they can be tailored to be the majority of the comfortable material (especially the parts touching skin). If ties are a nightmare, see if the groom & bride will be OK with taking off the tie after the pictures and ceremony are over.

As a guest, then you can have a good suit tailored just for him of comfortable material. It costs more, but it is a much better option than freaking out mid-wedding because your skin is crawling or on fire.

At many of the weddings I have been to, shoes have been ditched or exchanged by many people (men and women) at the reception for comfort purposes.

On wedding food, depending on how bad your food allergies/intollerances are it changes whether you just bring your own food or ask for changes in the available wedding food to be safe.

On light sensitivity, this one can be rough in a wedding especially during the dancing time if there is a disco ball. Irlen Contacts are the only thing for me that make dancing when there is a disco ball possible. At my own wedding I made sure there was NO disco ball or dry ice.

On sound sensitivity, for my wedding I picked ALL the music (even the DJ's entire available list). At other people's weddings, if the music makes me violently inclined we leave the area where the dancing happens or leave the wedding early. I haven't tried earplugs, but it probably is a good idea to have them in a pocket so that you can pull them out when you need them.

On smell sensitivity, find out if the wedding is going to be in religious building that believes in a lot of incense. If so, just let the bride & groom know you can't make the ceremony, but you might be able to make the reception. If the problem is perfume and you can't breathe, congratulate the newly married couple and then go to where you can breathe. If you have to leave to stay breathing then you have to leave.

On touch sensitivity, if you do try to dance, find the most open section of the dance floor so that no one touches or hits you while you dance. If you are hyposensitive and crave touch, then go to the most crowded part of the dance floor and dance away. I personally need my own section of the floor or I quickly get hysterical or fall.

My own wedding that was completely tailored around my personal sensory needs was the most sensory comfortable wedding I have ever been at. My wedding dress and shoes were 100% hand made of only comfortable materials. Expensive ($1500) but worth every dime as I was never uncomfortable in it.
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GreenEyedRach Offline
SPD Host
*

Posts: 5
Joined: Aug 2010
#4
RE: Weddings?

I read this, and smiled through your description of his difficult time - only because it sounded so familiar to me. Weddings - and large social gatherings in general - can be a nightmarish whir of sounds, smells, sights . . . it's an SPD's version of hell. Please remind him he is not alone!

The best thing you can do as a significant other is understand. Understand that if he needs a break, he needs a break, and if he feels agitated, it's part of his condition. I think those of us with SPD are perpetually fretting that we won't be enough for our significant others, friends, or family. It would only take the expression of support - you saying you care and you support him, followed by intense and focused understanding on your part - to put him more at ease.

The last time I was at a wedding was before I was diagnosed. I ended up at two Jewish weddings, one outdoors in the heat of a Mexican night, the other indoors - and packed - on a Sunday morning. Horrors. A Jewish tradition is a celebratory, spinning dance called a "hora," which is accompanied by loud, tangled music. I dread this moment at Jewish weddings because it's instantly too overwhelming for me and my sensory issues. I've learned to stand aside during the intense craziness and take photos - the camera in my hands makes me feel comfortable (hello, fidget), but also lets me act like I'm playing photog when all I want to do is hide under a rock.

Tools are so personal. I'm about breaks and fidgets, standing at the edge of a crowd or (sadly) berating myself in another room. I bet he's taught himself a few coping mechanisms over the years. I'm sure the wonderful examples above would help too.

I'm more concerned about your mental state right now. I know you feel selfish, and that's normal. How can any of us really understand what it's like in someone else's head? Picture the worst situation imaginable for you personally, the place that would make your skin crawl and your head burst, the event that would make you wish you could blend into the wall and cry until you had no strength left. Now picture being there on a daily basis. Welcome to the life of someone learning to cope with SPD. He needs someone to hear him, acknowledge his disorder, support his needs, and love him regardless. I know you are capable of this, even if it involves explaining to friends at parties that he's got a neurological disorder. People just don't know enough about SPD yet, and as a significant other, you are accepting the responsibility of helping spread the word. You do, after all, want him to be understood.

Anyhow, it's manageable on all sides. Neither of you are alone - he is part of this growing group of ours, and you are part of an equally growing group of newly-educated and ever-supportive significant others. We are lucky to have you on our side.

Best wishes,

Rachel S.
M.A. candidate, Mental Health Counseling
Yeshiva University, Class of 2013
comingtosenses.blogspot.com
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Ourfishies Offline
Regular

Posts: 39
Joined: Aug 2010
#5
RE: Weddings?

Thanks for everyone's suggestions. I shared all of them with my boyfriend and I hope it will help.
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jeanleryenierga
Guest

 
#6
RE: Weddings?

[Message Deleted]

/* Spam message removed, poster banned
(This post was last modified: 10-15-2010, 10:07 AM by Dani.)
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Ourfishies Offline
Regular

Posts: 39
Joined: Aug 2010
#7
RE: Weddings?

Hey!

So the anticipated wedding where my fiancée was a groomsman came and went. He's my hero, he looked so handsome and stayed till the end when the bride and groom left.

Our wedding is 5 months away now and there's a couple things on my mind. First of all, soon after he put on the groomsman tux, he threw up. The tie rubbing against his Adam's apple really bothers him. He threw up once more after that too. I get angry when people tell him he's not smiling enough. I mean, after I throw up, I just wanna curl up into a ball and cry. Yet he goes back into the party to get more pictures taken of him in the wedding party. That would be the absolute LAST thing I'd wanna do. Again, he's my hero.

He said for our wedding day he'll just suck it up, throw up a couple times, and then take the tie off as soon as the ceremony and pictures are done. But I'm wondering if there are other options. Any ideas? Are any of you really bothered by ties too?

The other thing is, he really seems to be a lot less uncomfortable after a few glasses of wine. He said he never wants to use alcohol as a crutch, but you can tell he's a lot calmer. I'm wondering if there is an anxiety medication that he can take before a wedding that would help to calm him down first. He's tried a couple anxiety medications before and I know they either haven't helped or the side effects have been too bad.

Does anyone else use anxiety medications to help with SPD and are there particular brands or kinds that work better?

Thanks guys. Smile

PS - We are SO excited to be married!! Five months couldn't go by fast enough!!!!!
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mawkinberd Offline
Regular

Posts: 218
Joined: Jun 2010
#8
RE: Weddings?

I was wondering how that groomsman gig went. Thank you so much for updating us on that. Big Grin

I'd definitely check with the place that sells tuxes to see what their least restrictive options are. You might try using a Mandarin collar shirt; those don't require a tie, so it might be easier for him to cope with. I can't stand things around my neck, either. Smile

I use anxiety medicine, but mine is a daily thing rather than an as-needed item. But if he has problems with some drugs, he might try them in lower doses. I have lots of troubles with depressant drugs, but it's mainly because I overreact to them. If I take a lower dose, it usually isn't as bad and still helps my anxiety. But check with a doctor, regardless.

I'm so excited that the wedding is getting closer. And I love how empathetic you are to his struggles. I think you're going in the right direction. Big Grin Keep us updated!
Affectionately yours,
Sarah
My Blog - Mawkinberd's Nest
Website Find Reply
Catherine Offline
Newbie

Posts: 9
Joined: Mar 2011
#9
RE: Weddings?

Congratulations on your upcoming wedding! I can't stand having anything rubbing against my neck either. Your fiance may want to go down to a local suit rental place and just ask to try on all their different style shirts/ties. Do you think a clip on tie would work? I hope he's able to find something that doesn't bother him too much.
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vanessa mary Offline
Newbie

Posts: 3
Joined: Nov 2012
#10
RE: Weddings?

(08-21-2010, 06:41 PM)mawkinberd Wrote: Aw, no problem on the ranting. hug It is very hard to deal with the way your expectations are very much turned on their head. It's not about being selfish; it's about learning to change what you expect and learning to appreciate new things. And while people with unfamiliar sensitivities may have completely different strengths than others, they do have interesting things that are wonderful all on their own. If not, you wouldn't be trying so hard to help him. Smile (Or, for that matter, be with him at all!)

Weddings can be torturous. I actually planned my wedding so that the elements that bother me the most were not a part of it. I had professionals doing my music (no out of tune craziness or tapes for me!), the flowers were mostly unscented or very lightly scented, it was a small church with only around 50 visitors and a short sermon, and NO DANCING. lol Since I've actually forced myself through the torture of being in disco clubs all night with some friends, I know I could make myself do it, but why make my wedding an awful memory?

So, as the bride, it seemed to go by so quickly. I was super focused on the words, on the way people looked at me and each other, on my husband's expressions, and so on. As the best man or something else like that, I can see that your boyfriend anticipates being overwhelmed by the ceremony. When I have to sit (or stand) in public for an extended period of time, I have several things I do. One, I tend to meditate. If I'm standing, I'll make it a body meditation, where I will pretend I am "breathing" through different body parts to help relax. If I'm sitting, I'll count to four on my breaths and repeat indefinitely. One, it keeps you from getting drowsy and groggy. Two, it can help keep your mind off of different body distractions. The only drawback to that is you have to practice a lot prior to the event to make it work. Another thing I do is have a fidget of some sort. I have a ring that is a pocket rosary. I twirl it around my finger or (in a pinch) squeeze it against my joints to distract from sudden sensory issues. Sometimes, I'll even use it as a rosary, if I have the foresight to do so. Since men have the advantage of wearing fancy clothes with pockets at weddings, he can slip something of varying sizes in his pocket and potentially put his hand in to fidget whenever he feels the need, and no one else need be the wiser.

As for the dancing, I understand completely. The moving around, the noise, the press of people around you... there are few social situations that turn my triggers worse than a public dance. (Fireworks and bars come to mind.) If he has obligations as part of the wedding party to dance, then that's understandable, but after that, encourage him to sit it out. There's no reason to stress himself that much. If he needs to make his excuses to the restroom and then return to the tables rather than the dance floor, that will help. It wouldn't bring any attention to it, and he would have a chance to escape most of the triggers and relax for a bit before he returns. Another thing he might consider (if he's very sensitive to sound) is some sort of light ear plugs, but if he were to do that, I would strongly encourage him to try them out well before he goes. Ear plugs can change your sense of balance as well as hearing, so it might be better to leave them off if it makes him feel as though he's going to fall.

Whatever plan he makes to help, work with all the coping mechanisms long before he gets there. As he gets to depend on and trust these things, he will gain confidence in his ability to be able to handle them and depend on them when he needs it most.

Everyone here has different ways they cope with different situations, so I'm sure you'll get more (and probably better!) suggestions. If he finds something he really likes, I would love to know!

Hi
Your Wedding arrangements sound exactly like mine! I had no more than 50 people,it was outside,& no dancing,I had a reasonably comfortable dress made although the bodice was way too stiff for my liking.I took my shoes off as soon as the church bit was done!
V
(This post was last modified: 11-02-2012, 02:29 AM by vanessa mary.)
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