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+--- Thread: Finally Diagnosed (/thread-68.html)
Finally Diagnosed - lilmomof2angels - 06-25-2010
Hi Everyone! I am so thankful for the information and support that I am finding online. My son turned 6 this month and after years of wondering what was wrong he was finally diagnosed with SPD yesterday. I feel like a huge weight was lifted off of me and I just wanted to cry because I finally can learn how to help him. I read a book on sensory issues 2 years ago but the counselor we were seeing and the pediatricians didn't think so. He has been to the dentist 5 times and they were finally able to clean his teeth on the 5th visit....not without a struggle. If one more doctor/teacher tells me that my sons behavior is unacceptable I think I am going to scream. Kindergarten was really tuff for him and I was constantly getting notes from the teacher about him. I took him to a psychologist who advised me to read 1-2-3 magic again. This frustrated me as I have already read parenting with love and logic and 1-2-3 magic. My mother told me that he is the type of kid that only a mother can love. My advice to other mothers is if think something is wrong trust your gut and keep getting more opinions. We saw 4 different dentists, 5 different pediatricians, 1 counselor and 1 psychologist. I can now recommend a fantastic pediatrician and dentist. My therapist is the one who actually had me complete the sensory form and helped us get on the waiting list for an evaluation and OT. I am so thankful that finally him and I can learn the skills we need to make him a happier little boy. One day at a time - 1 step forward and 2 steps backwards.
I have 2 children a daughter who is 7 and my son who is 6. We have two little schnoodles who keep us very busy. I enjoy volunteering for a animal rescue and spending time with my children, husband and dogs.
RE: Finally Diagnosed - Dani - 06-25-2010
Hi there, welcome to SPD International lilmomof2angels
I am glad to see you have gotten your son the diagnosis he needed. It sounds like it genuinely is something he's struggling with, so I'm thrilled to see that you are now on the right path.
(06-25-2010, 11:12 AM)lilmomof2angels Wrote: If one more doctor/teacher tells me that my sons behavior is unacceptable I think I am going to scream.Yeah, I can totally understand this. What's really unacceptable, in my books, is their blaming of you and him for his disability, and not accommodating accordingly for it. Now that you have your diagnosis though, it is imperative that you get him the support he needs at school. Most schools, though it may be a fight, will do stuff to accommodate for a child with diagnosed SPD. If they don't, then I would look into changing schools.
Quote:I took him to a psychologist who advised me to read 1-2-3 magic again. This frustrated me as I have already read parenting with love and logic and 1-2-3 magic.Yeah, I have to be honest. There is not much in the love and logic parenting technique that works for kids with SPD. It tends to imply that all children are 'cookie cut' and that no children really experience the world differently than others. Unfortunately, this is an ignorance that will not likely be shaken any time soon.
Quote:My mother told me that he is the type of kid that only a mother can love.
What? I'm sorry, but how is that a good thing to say? Who wants to only be loved by their mother? Kids naturally want to have friends and make it in the world. Statements like this imply that you shouldn't even bother helping him improve, and that would significantly hinder his ability to recover sooner and have a better childhood.
Quote:My advice to other mothers is if think something is wrong trust your gut and keep getting more opinions. One day at a time - 1 step forward and 2 steps backwards.Good advice, and a good approach. Thanks for posting it
.Quote:I have 2 children a daughter who is 7 and my son who is 6. We have two little schnoodles who keep us very busy. I enjoy volunteering for a animal rescue and spending time with my children, husband and dogs.Ah, that's really cool
. We have plenty of animal lovers here, and that list is only going to keep growing. I hope you find some people with similar interests here as things get rolling.I hope you enjoy your stay here. Again, welcome
.
RE: Finally Diagnosed - beck7422 - 06-26-2010
On your problems at the dentist, has your son needed major dental work? If so, have they been using Lidocaine on him? A portion of people with SPD are Lidocaine insensitive where Lidocaine and Novacaine do not numb much or it doesn't last long.
http://assets0.pubget.com/pdf/18174562.pdf
What are the behaviors that your son is exhibiting that other adults find so objectionable?