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+--- Thread: Mom of 7yo sensory seeker (/thread-847.html)
Mom of 7yo sensory seeker - JulieC - 01-15-2013
Hi, I am feeling the need for extra help with our 7yo daughter, Sydney. After a few years of seeing something was "off", but not being able to tell what it was, we finally got a diagnosis of Sensory Processing Disorder this past summer. She is an extreme sensory seeker. She is in private OT now, which is helping. We just got her approved (ETR complete, IEP upcoming) for an IEP under speech disability. That opens the door for her to get some other therapies and accommodations that can help with her SPD, but speech disabilities get corrected, then she won't be eligible for IEP services. I completed an autism screening (per my request) as part of the ETR. Per my responses, Sydney is "at risk" for autism spectrum disorder, but it is very murky and borderline. If she is autistic, it is at the high-functioning/Asperger's side of the spectrum.
I'm not sure what exactly I'm looking for right now. Actually, what I have been wishing for is a similar aged little girl with similar issues that lives near us that would needs a friend as much as Sydney does that we could foster a friendship between. While I am fairly confident that we can help her get around any academic issues that come up, I am lost as far as we can help her with her social needs. She has twin sisters that are 1.5 years older than she is, she plays with them, but hasn't clicked with anyone at school. She is sad because nobody wants to play with her on the playground. As she and her classmates are getting older, they are noticing that she is extra clumsy, that her clothing is often disheveled, and that she talks funny, and they avoid her.
She loves to talk, but has many articulation errors and has pragmatic issues (uses very big words, correctly, is very literal, will repeat phrases over and over) indicative of autism. She gets along very well with adults, but adults are more understanding, and they perceive her as cute and sweet, and they appreciate that she wants to do well and has a positive attitude. With other children, she does tend to be bossy, argumentative and competitive. Beyond this wish, I don't know what I want.If you got this far, thank you!
RE: Mom of 7yo sensory seeker - LAC1961 - 01-16-2013
I haven't looked into it, but I've read that some OT offices offer group activities where kids can play with others their own age. Then if she connects with someone there you could set up play dates on your own. I'm not a social networking user, but I believe there are Facebook and Yahoo pages where parents of SPD kids in the same area can connect and get together for play dates.
RE: Mom of 7yo sensory seeker - Sunshine - 01-20-2013
Hi there,
My biggest concern is my daughters social skills so I totally
Understand what you are saying. I got my daughter into a
10week social group ( kids her own age where they teach them
How to be a good friend,share, take turns, emphasise etc etc. it's run
By OTs the best thing I have done to date. I have lots of social
Stories too. Are you located in australia. I would be interested
In finding a local group to join to.
RE: Mom of 7yo sensory seeker - heather40 - 01-20-2013
Social skills are huge problems with these kids, I just put my son in scouts, he has been with the same kids at school since pre-k so they are used to him. lol It took him a long time to make friends but it is a more one on one. He never did well in a group activity and still really doesn't, it gets him so excited and then we get really loud and the hand flapping starts, etc... but has to be done! Anyway... what about girl scouts, do you have a park dist with different group activities for kids, etc. Check with your OT they always have lists of things, even the school social worker. That is another thing, have her see the school social worker, they do group work. My son see's his once a week and also eats lunch with her sometimes too.
RE: Mom of 7yo sensory seeker - Sunflower - 01-30-2013
My first posting here... but I also have a 7 year old with SPD, I think, and she also has twin sisters. This has been especially challenging. I have a lot to learn about how to handle this with my daughter. She has tactile defensiveness or I am not really sure the terms, but she has difficulty wearing clothes of all kinds and shoes. And transitions and the tantrums about small things have been coming up especially about bedtime. I look forward to reading these boards and learning more from other moms.
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