emtmomof4
Newbie
Posts: 2
Joined: Mar 2011
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HI! My name is Sarah. I am the mother of 4 children. My youngest, Brianna who was born June 2008, has SPD. She had a stroke when i was pregnant with her but we did not find out until June of 2010 when she started having seizures. Her doctor said that her motor skills and sensory had been damaged. After reading up on SPD I realized that this was the reason she cried all the time. Doctor thought she had colic. Most of the time we have no idea what is bothering her. Since she is two her only way to communicate is to cry. Sometimes she can tell us when something is bothering her like if the sun is too bright she tells us the "light" is hurting her. Another thing she complains about is her clothes and mostly the seems in her socks bother her. Every day has become a struggle with her to get her dressed, to go any where (she can't stand her carseat straps), and she throws complete tantrums and we never really find out why or what is bothering her. We just have to let her cry it out because even if I try to comfort her she just screams more. This has been very stressful on me since I am the one who cares for her 24/7. She has issues with being majorly attached to me. From the time she was 2 weeks old she wouldn't even allow her father to hold her. The thing I struggle with most is that I never know when she is just being 2 yr old throwing fits or whether it is the SPD. I don't know when I should just be understanding or discipline for trying to "get her way". On top of the SPD, she also has Cerebral Palsy affecting her left side and seizures. I am just looking for someone to talk to about this since no one I know knows about this or understands what I am going through. I hate going anywhere in public because I get looks from strangers like "Can't you control your child" or pity looks. I would really like some advise on how to deal with this because at times I do loose my temper and ask her why she just can't stop crying. Thank you for any advise you can lend.
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03-28-2011, 06:03 PM |
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