Lynn-
Thanks for the words of encouragement and advise.

Brianna has not been put on medication yet because she has only had 2 major seizures (the doctor's rule of thumb is to start meds after the third one) but we suspect she is having mild ones at night. Next weekend she will be going into the Children's Hospital for 4 days of monitoring so they can see what is happening to her exactly and if she needs the meds. Once they are on meds for seizures they are typically on them for at LEAST 2 yrs.

Sign language- I think I bought that video you have on here. I tried that but it only frustrated her more. She talks really well normally but when she has a fit she no longer communicates. But I think I will give it another try, this was several months back.

Socks-Brianna has to wear an AFO on her left leg everyday. An AFO is a brace to help her walk. If she doesn't have it on she tends to try to walk on the top of her foot and not the bottom bc the muscle in her leg/foot are so weak the foot doesn't bend up when she takes a step. She has to at least wear a sock with that one. Sometimes I do leave the sock off the other foot. I have tried looking for seamless socks but they are hard to find. Her orthodists place has them but they are $15 a pair. I do think I hit the jack pot with Babies-R-Us because I did find a pair there for $2.50 a pair. I bought one pair to try out, if it works I will go buy more.

She started OT This past January. I don't see much improvement but I know it will take time. In the car I carry a blanket so when the car turns into the direct sunlight she can cover herself. I will definitely try the strap covers. Never thought of that for her, I always related them to infants.

This seems like a "forever" thing and it just scares me that I won't be able to handle it but I know for her it is a lot worse to actually go through it. I just need others who know what I am going through to talk to.
Thank you

Sarah
mom of 4