Dani
Administrator
Posts: 261
Joined: Apr 2010
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RE: My son was diagnosed last year...and it's still sinking in
Hi there .
Welcome to SPD International. Great to have you here.
(07-19-2010, 05:51 PM)johnplummer Wrote: hated bright light
would just scream and scream for car rides,
didn't crawl
0% for weight
had no muscle tone.
convergence excess (eyes not converging)
fall down a lot.
couldn't jump at all
terrified to move from one surface to another
wouldn't climb ladders or go down slides
wouldn't crawl through tunnels.
What about me? LOL, I had every one of those issues as a child. Many of them are still issues today. Those are all trademark SPD symptoms there. Your son sounds pretty textbook...
Quote:It was immediately clear. He also has touch issues, sound issues, visual issues, taste issues as well as proprioceptive and vestibular.
Boy was I not surprised to see this. My diagnosis was pretty immediate too. I also wouldn't be surprised if smell issues come up too at some point, given that that's the only well known sense not listed there. You can also probably look for issues in the interoceptive sense (article about that in our Sensopedia wiki).
Quote:he is one of the funniest people I've ever met, is incredibly imaginative, and clearly brilliant with details and especially with language.
Awww... wow! The more I read, the more he sounds incredibly similar to me, lol. Well, I'll let you be the judge of my humor and linguistic brilliance though .
Quote:Even though the diagnosis is almost a year old, I feel like I'm finally waking up to the reality of SPD in our daily lives...
Even though my diagnosis (my initial diagnosis of SID, long story there) was 21 year ago, I feel like I'm just waking up to the reality of it, lol. Who? Me? Really? lol
Quote:Sensory Planet and the wonderfully helpful book, Raising a Sensory Smart Child by Linsey Biel and Nancy Peske,
Two pretty good resources they're, I'll agree. Carrie set up Sensory Planet, and as much as I love it, I would like a place where people not only don't ever have to pay anything, but also (hopefully) feel a lot more free to discuss other topics and get to know each other as well as just give and seek advice.
"Raising a Sensory Smart Child" is also an awesome book, I must say. It's easily in the top 3 most valuable for an SPD parent, IMO. I also have gotten to know Nancy a bit over the past 2 years via email, as she's on one of my other groups. She's a great lady, really is .
Quote:We are learning a lot more what preparation we need to give him, what tactics we can use to avert a meltdown or stop it quickly if it occurs. I am learning more about how much I need to educate family members and friends about what it feels like to be in his body and get the kind of information his senses receive,
This is why I wrote my article on meltdowns and posted it to SPD Parent SHARE. If you haven't read it, I think it might just be helpful for you:
My SPD meltdown article
I am really glad to have you here. I hope you enjoy your time on the group. Feel free to drop by the chat room sometime, or drop me a line . Best wishes to you and your family.
-Dan
Hi, welcome to SPD Support! Have a free cyber hug!
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07-20-2010, 06:29 PM |
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