thismom
Newbie
Posts: 2
Joined: May 2013
|
RE: Hello...any suggestions?
Thank you for your response! The link you provided was especially helpful and makes a lot of sense. I will see if I can download those books from amazon. I suspect that his primitive reflex development is off for several reasons. My son was premature and spent a lot of time in the hospital for the first 2 years, which I am sure has impacted all areas of development. In addition, I believe that some of it is diet related. He is missing most of his small bowel, so difficulty with digestion as well as deficiencies are major nutritional concerns of mine. He receives much of his nutrition IV, hence the daily infusions, and requires a special formula which further complicates dietary changes as a treatment option. One of the long term effects of his condition is neurodevelopmental delay due to malnourishment. Unfortunately his medical doctors deny that nutrition plays any role, or that he has sensory issues at all, and the sensory experts don't know how to treat him given his medical condition. We do have an appointment next week to be evaluated for OT, so hopefully the info you provided will help them. If not I will push on on my own. We are also pursuing evaluation with Boston Children's for his medical needs, so I am hoping they might be able to offer some input as well. His challenges include fine/gross motor delay, motor and speech planning difficulty, potty training issues, hypersensitivity to touch, sound, visual input, smell and body temperature regulation as well as obsessive & repetitive behaviors...just to name a few. We also have attention issues, problems following directions and sleep problems. I will have lots of questions, I'm sure, but thanks for a great starting point.
|
|
05-23-2013, 03:16 AM |
|