Gravelbed
Newbie
Posts: 2
Joined: Sep 2013
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RE: let me post silly site
Hi all,
Thanks to my dearest friend Karamel for having posted the first mail about my problem...good to get people like this beside you when times are hard.
And second thanks to Tuttleturtle for your reply! I'm wearing sunglasses the whole day, if you have other solution to propose than just regular sunglasses, please feel free to share. Many thanks.
Just to get you a bit more of information on my current status, I've been diagnosed 3 month ago with hypersensitivity of CNS and hypersensitivity of vestibular system (caloric test for ear give result of 108°/sec although should be lower than 80°/sec for someone with normal vestibular system according to neuro).
This gives me the feeling to be 24hours a day on a boat, dizziness, headache, the floor is not stable (this is not spinning vertigo) and to help on fixing this, the neuro put me on Topiramate (Topamax) to decrease excitability of neurons. Am now on 125mg, it helps a bit, can't deny, but neuro told me we need to find correct dose and we need time for that, could be couple of months or so. So I am increasing the dose step by step of 25 mg every 4 or 5 week to let my body getting used to it.
Due to that, am also sensible to light of course, that's why I'm wearing sunglasses and computer is a nightmare....seriously...and I have to work 8 hours a day behind a screen, so not that easy everyday.
But I keep on working because work gives me the balance in my life that CNS is not able to give me anymore... I need to wake up everyday and do something, and have responsibility and to think to something else.
Well, if anyone else have similar problems, feel free to share your ideas, suggestions, thoughts. ...and anyway, good luck to all of you!
Best regards from cold Belgium! ;-)
Gravelbed
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11-18-2013, 06:13 PM |
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