Jennyh
Regular
Posts: 37
Joined: Jun 2014
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Hi im looking for advice and support
Hi im Jenny a mum to Jayden who is 6. He has a twin sister and they were born at 31 weeks. When he was born he had lots of problems being 9 weeks premature, including 4-5 days where the whole nicu had to be as dark as poss and there were signs everywhere saying that they had to be quiet as he didn't like it. The first year of his life he did everything at least a month after his twin although by 15 months when they both started walking he was only a week behind her. He has always been clumsey and at 3 i looked into it a bit more i thought he had dyspraxia he was constantly falling over his own feet bumping into things etc. I did get him to a cdc who decided he didnt have it. Fast forward 3 years when i get spoken to by his teacher who askes me if i have ever heard of dyspraxia and they think he may have it. So currently we are trying to get him help with that. While looking more into dyspraxia i come across SPD. Jayden could be a poster boy. A few things we have on a daily basis, He doesnt like being tickled he never has done after 5 seconds max he is screraming it hurts. Cutting his nails is a task i hate he pulls away yelling it hurts. We have 20 minute temper tantrums because his sock seams are 'wrong' i now turn them all inside out. He is a very messy eater he will smear it over himself. Touching is on his terms he doesnt like being rubbed and if he doesn't want to be touched will pull away. He is like this both at home and at school. He blanks you to the point i end up yelling just to get a reaction. He touches the ground every few minutes - this drives me crazy! Every thing he touches has to touch his lips. The other day we went into the school hall he couldnt cope with the noise (it was very loud) he just stood there pushing his book bag to the ground and up as a coping mechanism. He has no sense of other peoples personal space and often will completely invade it. He is loud all the time. He has become overly agressive at times. These are just the things off the top of my head. He also has one leg that is longer then the other dyslexia. He has/ is having a groth spurt he is 126 cm tall at 6. I just feel so let down by the system at the moment the drs are saying the school nurse needs to help the school nurses say it should be the dr. Me and his teacher have done a CAF report to try to generate help. I have a meeting at the school with them his teacher the head and the school nurse on 2nd of June. I hope at least someone can help i feel like im drowning on it all at the moment
Thanks for reading my essay
Jenny xxx
He also can not sit still something has to be moving
(This post was last modified: 06-09-2014, 04:23 PM by Jennyh.)
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06-09-2014, 04:10 PM |
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