Hi
My little one is three end if September.
I knew when she was just a few hours old something was not right.
I haven't found anything other than skin to skin contact that comforts her and that's only with me. No kisses ever allowed. Baths make her hyper as it awakens all her nerve endings. Nothing helps with sleep Doesn't eat. And I mean doesn't eat not like some people's o my darling never eats. She lives on milk and occasional tiny amount of pasta or pizza. She is perfectly healthy though. Very tall photographic memory all the norm you would expect
The problem at the moment is she won't leave the house is very anxious at just the mention of it.
We will get there though. It will take as long as it takes (and like yourself no doubt) will do whatever it takes to make her life easier
Sorry just re read your post.
Main points
No sleep
No food
No pain feeling
No comfort
No kisses
Loves stones
Wont wear anything on feet
Wont have any covers or clothes on at bedtime (joke word)
Wind hurts her
Can't be wet
Love totally love swings

The list goes on and on.
Love her to bits!