(03-06-2012, 03:19 PM)owensmum Wrote: its a multisensory environment, its sooo relaxing http://www.worcestersnoezelen.org.uk/

Its the relaxation bits I was asking her to support our application for. Mainly i want a bubble tube installed in his room and a fiber harness so that it mimics what we use at the snoezelen center which is a treat for him, I'm not looking to do what the OT does.

We're definitely in different places - the lights in the snoezelen would send my son screaming out into the street. Flickering/changing lights = torture for him. Lighting can be a major trigger for his emotional issues.

(03-06-2012, 03:19 PM)owensmum Wrote: I think our OT though was thinking we should be asking for the tools she uses at the clinic - which I totally agree with you on that it would just stress my boy out. I used to want to be at him constantly with exercises and because school wont have him in full time due to meltdowns I was always on his case that being at home is not an easy option and get him working all day. but now I think if "the world" is gonna be against my poor little man then I am gonna be his best friend and make home as you say his safe place.

To sidetrack a bit, on the meltdowns: are you using a nutritional supplements or diet modifications to help with those? Under the guidance of a neurologist, my son started on a supplements program that has cut his meltdowns by 95%. The bad news was it took a round of blood tests to determine what supplements he needs, and there will be further blood tests for monitoring, but life is so much better. We also use a gluten-free, soy-free diet, which is high in protein and low on the glycemic scale. If he doesn't start his day with a high protein breakfast, there will be problems well before lunch. That means homemade pancakes or waffles, sausage, eggs, cheese or peanut butter for breakfast every day. I get a bit tired of all the specialized cooking!